Prevalence of Disability and Drop out from Treatment : A Cross-sectional Study of Social Stigma and Motivation for Healing Among People Affected by Leprosy in District of Jember, East Java Province, Indonesia
Mahardita, Nilam Ganung Permata
Wuryaningsih, Emi Wuri
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The social stigma associated with leprosy inhibits the process of treatment and social life of patients, and may result in poor access to healthcare services and overall quality of life. This study aims to investigate social stigma and motivation for healing toward degree of disability (DD) and drop out from treatment (DOT) among People/ Persons Affected by Leprosy (PAL) in public health centers (PHCs) of Indonesia. This cross-sectional study involved 93 people affected by leprosy who were recruited using cluster random sampling technique from 13 PHCs in the District of Jember from March to May 2018. A self-administered questionnaire was designed to collect data, including: sociodemographic data, Internalized Stigma of Mental Illness scale, and Client Motivation for Therapy Scale. Secondary data of DD and DOT were measured from PHCs' medical records. Data were analyzed using logistic regression to measure factors that influenced DD and DOT among PALs. From 93 PALs, it is found that prevalence of DD was 21.5% and DOT was 73.1%. The identified factors relating to DD of PALs were age, ethnicity, length of medication, stereotype endorsement, discrimination experience, integrated regulation, and intro rejected regulation. Meanwhile, social stigma and integrated regulations were observed to be the factors related to DOT (P < 0.05). Social stigma and motivation for healing were associated DD and DOT among PALs in communities. Therefore, a community-based rehabilitation for PALs which involves various elements of the community should be developed to reduce the social stigma for improving holistic and comprehensive care for PALs during the treatment with multi drug therapy.
- LSP-Jurnal Ilmiah Dosen